Monday, June 27, 2011

Division of "autism" moms

You know, when you find out your kid has an "issue", any issue for that matter, different personality styles will handle the "issue" differently. What continues to surprise me all these years later is how the different styles of dealing with autism, ADHD, anxiety, allergies (fill in the problem here)can be so against one another. My way of handling the problems (and yes, I view allergies, asthma, autism, anxiety, and speech delays as a problem)is to find the root and try my best to fix it naturally (this is because I think the environment played a part in the problem). What I have noticed in my journey is that my type is in the minority. At first I was more judgmental about why other parents would not choose to heal their children through means beyond the mainstream course of action since the mainstream course of action produces such minimal results. In the years since I started this process; however, I have become much more understanding that some mothers deal with things differently and that is not for me to judge (though I will admit I am a work in progress). What I have learned is that virtually every mom does what she deems best for her family, so far be it for me to decide what someone else thinks is best for them. There is another school of thought that consists of "these are the cards I have been dealt" (I actually admire that school of thought, a bit) and that's how God made my kids(that's the part I take issue with) and so there is really no need for me to attempt all these "unproven" methods of healing. I know several mothers (or know of) this parenting style and these moms and families are actually quite happy. They say, my kid has autism (or speech delay or anxiety or ADHD or whatever) and I will take what the state (or school system or pediatrician) gives me and move forward with my life.

The most disturbing part of the division of belief systems is the animosity for the other side. I have had a few parents reach out to me when they realized their kids were struggling and I have given them advice on what we did to improve our situation (I now rarely ever dole out advice, fyi). What has happened on numerous occasions is that those parents end up not "buying" into my school of thought (I mean, why would they...not one mainstream doctor or therapist probably supports it) and they actually will stop speaking to me or contacting me. As a human being, it does hurt my feelings....you would think after the friends I initially lost once we went biomedical it would be okay, but even four years later, it does sting a bit. I would think a recovered child would give me enough credibility, but I suppose, it does not. I have plenty of biomed friends that think along the exact same lines as I do, but I do wish there wasn't such a huge division of autism moms. I think we can all agree that there are too many sick kids today and we simply cannot accept this is what the Universe intended!

3 comments:

Drew's diary said...

I hear ya. I used to tell all the other moms and dads all about our "methods" for recovering Drew. Then, it became almost just uncomfortable and confrontational or maybe offensive/defensive. I, too, stopped passing out advice to anyone and everyone in listening range. Many times, I literally have to bite my lip. We all handle this differently. I still think it is unfair no matter how it is handled. And FWIW, I'm so thankful that you doled out some advice to me. :)

Anonymous said...

About 6 months ago I woke up one morning and I said the words "Its the tylenol" I hadn't done or seen any research about it. We stopped tylenol a year ago because of the recalls and switched to a generic ibuprofen. I've since done a lot of research and have started creating a timeline and realized that my son regressed after almost every dose he got for vaccines and his many fevers. Its the reason I think so many kids with infant ear infections are autistic - because they more than likely received tylenol. These doctors tell us to give tylenol from 2 months and most people never switch. I believe it is not only a factor but the CAUSE. I would urge any parent to NEVER GIVE TYLENOL - not even to chase Ibuprofen. My 4 year old son has been off tylenol for almost a year now and we have seen drastic improvements. Now he MAKES EYE CONTACT, HE IS ENGAGING - HE GOT HIS SPARK BACK! He is almost at the developmental level of a 2 yr old now. At 3 we were told some of his skills were like a 6 month old. This year, he enjoyed the fireworks on the 4th and as the sun was setting before the show he pointed and said for the first time in his life, "I see the sun! I see the sun!" TYLENOL CAUSES AUTISM. To anyone with a nonverbal son, please believe it and please stop giving it to your children.

alycat3 said...

Hear, hear. I totally understand as a mom of a 3.75 year old boy who is on the way to recovery (started biomedical 7 months ago). I always get the deer-in-the-headlights look whenever I talk about anything not mainstream, I can't believe it!! Sending you guys all my best,
Aly and Max from Canada